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rideATAXIA Philly 2019

October 13, 2019 @ 12:00 am

Friedreich’s Ataxia Research Alliance (FARA). A 501(c)(3),  non-profit organization dedicated to funding research to cure Friedreich’s Ataxia, a debilitating, life-shortening, degenerative neuromuscular disorder with no treatment or cure.

Brief Description: 4, 8, 25, and 50 mile route options. Fully stocked rest stops, strong SAG support, and delicious post ride food prepared by Outback Steakhouse, Carrabba’s Italian Grill and Bonefish Grill. Fundraising benefits the Friedreich’s Ataxia Research Alliance (FARA). Fundraising is not required but strongly encouraged. For details including route maps and registration visit:  rideATAXIA.org/philly

Registration Fee: $50 Regular Priced Cyclist (No Fundraising Minimum) or $30 Reduced Price Cyclist (With $200 Fundraising Minimum); increases by $5 for same day registration. Registration fee includes ride, lunch, and event t-shirt.

Friedreich’s ataxia (FA) is a debilitating multi-system disease and the most common type of inherited ataxia. 1 in 100 people are carriers of the FA gene. What begins as difficulty with balance and coordination progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active lives. FA also presents serious risk of diabetes and life shortening cardiac disease. As of today, there is no treatment or cure. Fundraising to support FA research is strongly encouraged, but not required.

Location:
Montgomery County Community College
340 Dekalb Pike
Blue Bell, Pennsylvania 19422

Event Contact: email Jamie Young

Details

Date:
October 13, 2019
Time:
12:00 am
Website:
www.rideATAXIA.org/philly